Managing Community Home-Based Care Intervention for Children Living with HIV in Jakarta, Indonesia (2009-2024): Role of Social Workers

Authors

  • Gracia V.P.K. Simanullang University Center of Excellence – HIV AIDS Research Center Health Policy and Social Innovation Faculty of Psychology Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia
  • Evadana Rachmat Lentera Anak Pelangi, Jakarta, Indonesia
  • Johanna Debora Imelda Departement of Social Welfare, Universitas Indonesia, Indonesia
  • Kartika Anggita Lentera Anak Pelangi, Jakarta, Indonesia
  • Irwanto Irwanto Atma Jaya Catholic University of Indonesia, Indonesia

DOI:

https://doi.org/10.58671/aswj.v13i2.115

Keywords:

Children and Adolescent Living with HIV and AIDS, community home-based care, social workers, ARV adherence, Viral Load suppression

Abstract

Children and Adolescents living with HIV and AIDS (CALHIV) are one of the most vulnerable populations, especially those living in underserved and marginal communities. This article presents lessons learned and challenges of a Community Home-Based Care (CHBC) intervention by Lentera Anak Pelangi (LAP). This intervention program was initiated as an extension service during the university’s research for a Harm Reduction Program to prevent HIV infection among injecting drug users (IDUs) managed by the HIV and AIDS Research Center, Atma Jaya Indonesian Catholic University (ARC-AJCUI). LAP was established to respond to community reports about children of IDUs who were neglected by community and families. Since 2009, AJCUI, assisted by government agencies, communities and professionals have supported the children of IDUs who were impacted (affected or infected) by HIV, by advocating their families and communities lacking the right information and education about HIV, and. providing access to resources to fulfill the children’s basic needs and rights. Case file data accumulated over 15 years are presented to highlight LAP journeys as one of the very few HIV community organization providing home-based and multi-disciplinary intervention programs that fills the void in Indonesia’s HIV services and make significant impacts to the lives of CALHIV in Indonesia.

Author Biographies

Gracia V.P.K. Simanullang, University Center of Excellence – HIV AIDS Research Center Health Policy and Social Innovation Faculty of Psychology Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia

Director, University Center of Excellence – HIV AIDS Research Center Health Policy and Social Innovation, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia. Lecturer, Faculty of Psychology, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia. MSc in Health Psychology (The University of Sydney, Sydney, Australia); Ph.D in Public Health (University of Illinois Chicago, Chicago, USA). Research Interests: Children, Adolescents, Women, HIV, Health, Mental Health, and Psychosocial Interventions among marginalized populations.

Evadana Rachmat, Lentera Anak Pelangi, Jakarta, Indonesia

Director, Lentera Anak Pelangi, Jakarta, Indonesia. MBA (Haas School of Business at UC. Berkeley, California, USA) and BSc in Industrial Engineering (Northwestern University, Illinois,USA).

 

Johanna Debora Imelda, Departement of Social Welfare, Universitas Indonesia, Indonesia

Associate Professor, Department of Social Welfare, Faculty of Social and Political Sciences, Universitas Indonesia. MA in Population and Development Studies (the Institute of Social Studies, The Hague, The Netherlands); MA in Medical Anthropology (Universiteit van Amsterdam, The Netherlands); Ph.D (the Faculty of Social and Behaviour, Universiteit van Amsterdam, The Netherlands). Concerns: Children, Women, and Health. Recent publications: Book Chapter: Tacit Power: A Case of HIV- Positive Housewives in Indonesia. (The SAGE Handbook of Global Sexualities, 2020); The Dynamics of Power Relations and Injunctive Norms on Child Participation in Development Planning (Jurnal Ilmu Sosial dan Ilmu Politik Q3 SJR 2021=0,17, 2023); Book Chapter: Economic Imperatives and Implementation Biases Inhibit the COVID-19 Response (seajunction, 2023).

Kartika Anggita, Lentera Anak Pelangi, Jakarta, Indonesia

Psychosocial Advisor, Lentera Anak Pelangi, Jakarta, Indonesia. Board member, PETKI (Association of Indonesian Christian Blind). M.InterDevPractice in International Development Practice (Monash University, Australia). Research interests: disability & social inclusion, marginalized population, children, and development. Recent publication: 2024. Finding alternative community-based learning delivery for parenting skills during Covid-19 for mother with children aged 0-3 years old. (Front. Educ. 9:1386679. DOI: 10.3389/feduc.2024.1386679).

Irwanto Irwanto, Atma Jaya Catholic University of Indonesia, Indonesia

Full-time Professor, Lecturer, Faculty of Psychology, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia. Founder and Advisor, Lentera Anak Pelangi, Jakarta, Indonesia. Senior Advisor, University Center of Excellence – HIV AIDS Research Center Health Policy and Social Innovation, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia. Adjunct Lecturer, Faculty of Politics and Social Sciences, University of Indonesia, Depok, Indonesia. Post-doctoral Fellow, Department of Community Health, University of Illinois, Chicago, USA. MSc. and PhD. In Child Development and Family Studies, Purdue University, Indiana, USA. Expertise: children, youth, and young adult with drugs and HIV, disability, stigma and discrimination, leprosy Initiatives, violence against children, and the rights of children and member of social minority groups. Recent publication: Incorporating acute HIV infection screening, same-day diagnosis and antiretroviral treatment into routine services for key populations at sexual health clinics in Indonesia: a baseline analysis of the INTERACT prospective study (Journal of the International Aids Society, 2025).

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Published

2025-12-29

How to Cite

Simanullang, G. V. ., Rachmat, E. ., Imelda, J. D., Anggita, K., & Irwanto, I. (2025). Managing Community Home-Based Care Intervention for Children Living with HIV in Jakarta, Indonesia (2009-2024): Role of Social Workers. Asean Social Work Journal, 13(2). https://doi.org/10.58671/aswj.v13i2.115

Issue

Vol. 13 No. 2, December 2025

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Articles

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Copyright (c) 2025 Gracia V.P.K. Simanullang, Evadana Rachmat, Johanna Debora Imelda, Kartika Anggita, Irwanto Irwanto

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